Treatment: The
Alternative
By TALA
SKARI
From the outside, the attractive, three-story brick home
on a quiet street in Bourg-la-Reine, a middle-class suburb
south of Paris, looks pretty ordinary. But inside, extraordinary
things are happening: in the salon, a girl pounds intently
on an old upright piano; in the kitchen, a gangly 17-year-old
jiggles to reggae while slicing tomatoes; in the basement,
three boys are carving wood. Whats so special about
these seemingly routine activities? They are performed by
kids who are profoundly autistic.
Alternance, as this house
is known, is a home away from home for 15 severely autistic
teenagers and their families. Before it opened in 1993, there
were no solutions for autistic teenagers, says director
Catherine Allier, a special-education teacher for autistic
children. The only thing we could suggest to parents
was to send their children to big institutions. It was a terrible
choice. Mothers felt like they were abandoning their children.
To provide an alternative, Allier and some of her colleagues,
joined by parents, launched this group home, which offers
kids two weeks of daytime activities followed by a week of
residency. The idea is to save them from what Allier describes
as the ghetto of autism, where they gradually
become excluded from all social activity: Our role is
to help them acquire a certain measure of autonomy, to prepare
their transition to adult living. In the beginning,
she recalls, people thought I was crazy. But her
results have convinced them otherwise.
Alternance follows no particular method, except perhaps to
treat each child as a person rather than a patient. We
try to get them to open up, Allier says, by treating
them as normally as possible. We try to use common sense.
They understand when they are here that we treat them as normal
teenagers, not as poor little autistic kids.
That means Alternance residents are expected to help with
the household chores and are given training in skills like
woodworking and cooking, as well as basic reading and writing.
And the kids have busy social lives, including regular outings
to local gyms, restaurants and cinemas. Last year, a group
of kids and teachers formed their own musical ensemble and
traveled to Moscow for a gig at a city jazz school. Our
idea is to keep it small and home-like, says Allier.
We didnt want to have an institutional feel.
Alternance is run by a staff of 25, including psychologists,
special-education instructors, speech and physical therapists,
house mothers and a nurse. The homes 31 million budget
is paid for by French social security.
Alternance is devoted to difficult cases, with most residents
suffering from serious behavioral disorders and learning disabilities.
Some can be violent. One 18-year-old, for example, was the
terror of his family at home, beating his mother and sister
and running away in the middle of the night. Since he has
been at Alternance he has calmed down considerably and is
less prone to lashing out so much so that hes
allowed to slice tomatoes for lunch. Encouraging stories like
this one, coupled with an acute shortage of facilities in
France, means demand for places is high.
For those fortunate enough to find a slot, Alternance helps
return family life to a semblance of normality. An autistic
child can monopolize a household by his or her need for constant
care and attention, thus putting unbearable strain on parents
and siblings. We have parents who call and threaten
to commit suicide with their children because of the
pressure, Allier says. But the problem is, for the most
dire cases there are often the fewest solutions. Its
absolutely abnormal that such children remain at home all
the time.
A stay at Alternance allows everyone to breathe easier: parents
can relax a little and re-establish or improve their relationships
with each other and their other children. To help address
urgent needs, two more Alternance centers have been set up,
one in Paris and another for adults in Antony, a Parisian
suburb, while a fourth is being planned. Thousands of French
families facing an uncertain future and a dearth of options
can only hope that more will follow.
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