Magazine content is available exclusively for TIME subscribers.Miracle Drug: Only $350,000 a Year
CEREDASE, A BREAKTHROUGH TREATMENT for the crippling and sometimes fatal , genetic disorder called Gaucher's disease, is changing lives, even saving them -- but not always making them better. For Jeanne Rogal, 29, of Harrisburg, Pennsylvania, Ceredase has reduced the pain from her crumbling bones, removed the lipid deposits choking her liver, and restored her energy so she can enjoy life again. But with it comes a crushing financial burden: Ceredase can cost up to $350,000 for a year's treatment.
Rogal has already exhausted one health-insurance policy and is whittling down a second. Although Medicaid pays part of the cost of...
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